This brochure provides insight into nutrition and nutritional issues related to ALS, and offers a number of possible tips and solutions.
It can also be useful for those around you—informal caregivers (family, friends), personal assistants, general practitioners, nurses, and others.
When eating becomes difficult, there may be a tendency to eat and drink less. However, food and fluids are crucial to maintaining quality of life for everyone—especially for those affected by muscle weakness.
Individual, professional guidance in the area of nutrition is by no means a luxury. Symptoms, complaints, and appropriate treatments can vary greatly from person to person. Personalized advice and care are essential. You can access this support at a neuromuscular reference center (NMRC), where a team of specialists is ready to assist you in all areas impacted by your condition.
Understanding what is happening in your body, and knowing what your therapist or doctor is recommending and why, can help reduce worry and anxiety—and increase the chances of a successful treatment.
In the care of people with chronic illnesses, there is growing emphasis on dialogue and transparency between healthcare providers and you—the person living with the disease—who must be well informed.