HELP US:
Support us in our fight against ALS
Key Themes
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Information for patients
Here you can find all the services offered by the ALS League. From personal support from our Liaison or Case Manager, to information sessions on various topics, to more practical help we can offer. For more information on ALS, the care landscape, government services,… please refer to the bar at…
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Our mission and vision
Mission As a non-subsidised national ALS organisation, our mission is to represent the interests of pALS ‘persons with ALS’ at both national and international levels. Nationally, we do this by offering free of charge expert care and support physically (ALS Mobility & Digitalk), mentally and socially (Mamuze) to pALS, their…
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Information for donors
The ALS League is fully committed to the fight against ALS every day. Help in the fight against ALS in various ways: donate and receive a tax certificate, consider a gift in your will or organise a campaign. Together we make a difference! Help out: Strong together against ALS At…
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Warning About Unauthorized Stem Cell Therapies
The FAGG warns against unauthorized stem cell therapies offered online by providers outside the European Union, particularly from Turkey, such as Liv Hospital and You StemCell. These treatments may pose serious health risks. Stem cell therapy is a medical treatment in which stem cells are used to replace damaged, diseased, or missing cells in the […]
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Restoring Regulatory Fairness and Reclaiming Biomedical Leadership: ALS, Rare Disease Regulation, and the Future of Regenerative Medicine
Abstract Amyotrophic Lateral Sclerosis (ALS) remains one of the most difficult neurodegenerative diseases in modern medicine. Despite major advances in molecular biology, genomics, biomarker science, and regenerative medicine, patients still face a largely fatal prognosis and very limited therapeutic options. The regulatory evaluation of emerging ALS therapies has exposed deeper tensions inside the modern FDA. […]
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Ionis announces positive topline results from Phase 3 FUSION study of ulefnersen marking significant milestone in advancing treatment for FUS-ALS
22 September 2026 Ulefnersen demonstrated a statistically significant improvement on the primary endpoint assessing functional impairment and survival in people living with FUS-ALS, supporting the potential to modify disease progression Results will be discussed with the U.S. FDA and health authorities globally to enable potential expedited regulatory submission pathways for approval Ionis Pharmaceuticals and Otsuka […]
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2025 Campaign – Roberta Flack – Killing me softly- World ALS Day
Together we make a difference: Discover our new campaign Killing Me Softly, a powerful call against ALS From 16 to…
Stand up for ALS
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ALS Actions
From now on, taking action is very easy and transparent. Would you like to help raise awareness of ALS and raise money for ALS? Then create an action page directly via ALSacties.be. This way, you can easily start an action to help in the fight against ALS. The ALS League’s current…
Activities
Info sessions
Along several channels, we hear the need for information. So this is where we started!
We are starting a new project, namely organizing free monthly information sessions.
Activities by us
At the ALS League, we are actively committed to organizing events and initiatives that not only bring people together, but also contribute to awareness and support for pALS and their loved ones. From informative meetings and sporting challenges to fundraising events, all of these activities are set up by us with one goal: to strengthen the fight against ALS. Discover here which activities we organize and how you can participate.
Activities for us
Many people are committed to supporting the ALS League by setting up events or actions themselves. Whether it is a benefit concert, a sponsored walk or a creative collection campaign, every effort helps us to support research and provide pALS with the necessary help. On this page you will find an overview of initiatives that are organized for the benefit of the ALS League.
Together we make the difference!