HELP US:
Support us in our fight against ALS
Key Themes
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Information for patients
Here you can find all the services offered by the ALS League. From personal support from our Liaison or Case Manager, to information sessions on various topics, to more practical help we can offer. For more information on ALS, the care landscape, government services,… please refer to the bar at…
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Our mission and vision
Mission As a non-subsidised national ALS organisation, our mission is to represent the interests of pALS ‘persons with ALS’ at both national and international levels. Nationally, we do this by offering free of charge expert care and support physically (ALS Mobility & Digitalk), mentally and socially (Mamuze) to pALS, their…
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Information for donors
The ALS League is fully committed to the fight against ALS every day. Help in the fight against ALS in various ways: donate and receive a tax certificate, consider a gift in your will or organise a campaign. Together we make a difference! Help out: Strong together against ALS At…
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Keeping weight steady after tube feeding may help ALS survival
23 April 2026 Study suggests benefit tied to stable weight, not calorie levels Maintaining body weight after starting enteral nutrition, or tube feeding, may help extend survival in people with amyotrophic lateral sclerosis (ALS), a study in Japan suggests. In an analysis of 121 patients, those with smaller weight declines after starting tube feeding lived significantly longer, […]
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ALS reveals more and more its secrets
Amyotrophic Lateral Sclerosis (ALS) is a rare disease. The primary reason being that patients decease rapidly: consequently they stay low number. It sounds cruel and it is. Neurobiologist Ludo Van Den Bosch and neurologist Philip Van Damme eagerly keep investigating the mechanisms that cause ALS and ways to interfere. Van Den Bosch does it from its lab in the […]
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UniQure discontinues development of AMT-162 for ALS
05/05/2026 UniQure provides an update on the status of the AMT-162 investigational gene therapy program for SOD1-ALS. In 2025, the company voluntarily paused enrollment in the Phase I/II EPISOD1 multi-center, open-label U.S. trial of AMT-162 for the treatment of SOD1-ALS, following an Independent Data Monitoring Committee review of available preliminary safety and efficacy data, including a severe […]
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2025 Campaign – Roberta Flack – Killing me softly- World ALS Day
Together we make a difference: Discover our new campaign Killing Me Softly, a powerful call against ALS From 16 to…
Stand up for ALS
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ALS Actions
From now on, taking action is very easy and transparent. Would you like to help raise awareness of ALS and raise money for ALS? Then create an action page directly via ALSacties.be. This way, you can easily start an action to help in the fight against ALS. The ALS League’s current…
Activities
Info sessions
Along several channels, we hear the need for information. So this is where we started!
We are starting a new project, namely organizing free monthly information sessions.
Activities by us
At the ALS League, we are actively committed to organizing events and initiatives that not only bring people together, but also contribute to awareness and support for pALS and their loved ones. From informative meetings and sporting challenges to fundraising events, all of these activities are set up by us with one goal: to strengthen the fight against ALS. Discover here which activities we organize and how you can participate.
Activities for us
Many people are committed to supporting the ALS League by setting up events or actions themselves. Whether it is a benefit concert, a sponsored walk or a creative collection campaign, every effort helps us to support research and provide pALS with the necessary help. On this page you will find an overview of initiatives that are organized for the benefit of the ALS League.
Together we make the difference!