Mission

As a non-subsidised national ALS organisation, our mission is to represent the interests of pALS ‘persons with ALS’ at both national and international levels. Nationally, we do this by offering free of charge expert care and support physically (ALS Mobility & Digitalk), mentally and socially (Mamuze) to pALS, their loved ones and all parties involved, by raising public awareness and making scientific research more accessible. We encourage this research through the research fund A Cure for ALS, where all donations go entirely to ALS research. The League is pinning its hopes on scientific research and trying, on the one hand, to make this research more accessible and, on the other, to encourage it to help eradicate ALS.

Besides a national role, the League also plays a prominent role in an international framework. Thus, the ALS League has already launched several international aid projects, both within and outside Europe, and is actively working within the International Alliance. Thus, the ALS League has also founded EUpALS, the European Organisation for Professionals and Persons with ALS, to ease European legislation around research and optimise quality of life in favour of pALS.

The ALS League strives to be a transparent, driving force in the fight against ALS in Belgium, Europe and the rest of the world. pALS have an unconditional right to appropriate attention medically, socially, financially and morally regardless of their personal background. To fulfil this mission, we rely on employees who share our mission and values.

Where needs of pALS are inadequately met, we are going to develop necessary complementary initiatives to meet their needs. We defend their rights and try to promote them as widely as possible in our society.
The League and all its representatives should always act with honesty and integrity while behaving ethically. The latter means that our operation should only aim to eliminate ALS from the world and improve the quality of life of pALS.

The ALS League plays an active role in research communication to third parties and continues to advocate priority support for projects focused on rare diseases.

Vision:

A future where ALS is not a death sentence, but a curable disease.

A world where both cause and cure are known.

Values
o Equality – everyone is entitled to equal treatment and support regardless of age, background, place of residence, gender or other factors
o Balance – in a field where emotion plays a major role, we consider it important to also maintain a rational view in order to interpret situations correctly
o Honesty – we always communicate openly and transparently
o Fine-tuning & Continuous Improvement – we always strive for improvement in order to achieve positive growth. We maintain a critical eye, both inside and outside the organisation, creating space and understanding for everyone’s opinion