Mission
As the national non-profit ALS organization in Belgium, it is our mission to represent and defend the interests of people living with ALS (pALS), both nationally and internationally.
On a national level, we do this by offering expert care and support free of charge to pALS, their families, and all those involved. This includes physical assistance (via ALS Mobility & Digitalk), mental and social support (via Mamuze), raising public awareness, and making scientific research more accessible. We actively promote research through the A Cure for ALS fund, where 100% of donations go directly to ALS research. The ALS League places its hope in scientific progress and strives to both support and promote research in order to help eliminate ALS from the world.
In addition to its national role, the League plays a prominent part on the international stage. The ALS League has initiated several international aid projects, both within and outside of Europe, and is an active participant in the International Alliance. It also founded EUpALS, the European Organization for Professionals and People with ALS, to help ease European legislation surrounding research and to improve quality of life for pALS across Europe.
The ALS League aims to be a transparent and driving force in the fight against ALS—in Belgium, in Europe, and across the world. People with ALS have an unconditional right to appropriate attention in medical, social, financial, and moral aspects of life, regardless of their personal background. To fulfill this mission, we rely on team members who share our values and vision.
Wherever the needs of pALS are insufficiently met, we take the initiative to develop additional solutions and services to bridge those gaps. We advocate for their rights and strive to expand those rights within society.
The League and all its representatives are committed to acting with honesty and integrity, guided by a strong ethical foundation. Our work must always be focused on two key goals: eliminating ALS and improving the quality of life for those affected by it.
Finally, the ALS League plays an active role in communicating research to the wider public and continues to advocate for prioritized support of projects focused on rare diseases.
Vision:
A future where ALS is not a death sentence, but a curable disease.
A world where both the cause and the cure are known.
Values
- Equality – Everyone has the right to equal treatment and support, regardless of age, background, place of residence, gender, or any other factors.
- Balance – In a field where emotions run high, we believe it is important to maintain a rational perspective to correctly interpret situations.
- Honesty – We always communicate openly and transparently.
- Fine-tuning & Continuous Improvement – We strive continuously to improve and foster positive growth. We maintain a critical perspective both inside and outside the organization, creating space and understanding for everyone’s opinions.
