By Barbara Bronson Gray, registered nurse, Master in Nursing
There is often a lot of stress on the relationship between someone with ALS and the caregiver. Here are some tips on things you can do to keep your relationships as healthy and positive as possible:
- Communicate, communicate, communicate: Don’t assume that the other person understands what you are thinking, needing, or are going through. Share your thoughts and concerns, as far as you feel comfortable. Let people know what you need and what you don’t and encourage them to communicate with you as well.
- Listen, listen, listen: Your friends and family need to be heard. Even if you are busy with the challenges of ALS, listen to the everyday things in the lives of the people you care about. Listen to what is happening to them, help them, and encourage them as much as you can.
- Admit your losses: Try not to pretend that the lifestyle or opportunities you have lost or might lose mean nothing. It is healthy to talk about what you miss and regret. Experts suggest that you then focus on what you can do now.
- Maintain your social contacts: It is important to stay in touch with your friends and family, to keep up to date with the latest developments in their lives, and to spend time together in a pleasant way. You may be tempted to avoid social events due to your physical limitations, but force yourself to stay with the group and meet the people you like. If you feel depressed or despondent, the presence of people you care about can be a great boost.
- Be kind: Whatever your situation, kindness is essential for relationship management.