HELP US:
Support us in our fight against ALS
Key Themes
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Information for patients
Here you can find all the services offered by the ALS League. From personal support from our Liaison or Case Manager, to information sessions on various topics, to more practical help we can offer. For more information on ALS, the care landscape, government services,… please refer to the bar at…
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Our mission and vision
Mission As a non-subsidised national ALS organisation, our mission is to represent the interests of pALS ‘persons with ALS’ at both national and international levels. Nationally, we do this by offering free of charge expert care and support physically (ALS Mobility & Digitalk), mentally and socially (Mamuze) to pALS, their…
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Information for donors
The ALS League is fully committed to the fight against ALS every day. Help in the fight against ALS in various ways: donate and receive a tax certificate, consider a gift in your will or organise a campaign. Together we make a difference! Help out: Strong together against ALS At…
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Biogen registers first-in-human trial for STMN2-targeted ASO in broad ALS
Biogen has registered a first-in-human Phase I/II trial of BIIB147, an investigational antisense oligonucleotide (ASO) that the company said targets stathmin-2 (STMN2) pre-mRNA, in adults with ALS who carry no pathogenic or uncertain variants in the SOD1 or FUS genes. According to a Biogen Q2 2026 SEC filing, the company exercised an option in Q2 […]
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Otsuka Establishes Ulefnersen Early Access Program (EAP) for Eligible People Living with FUS-ALS
22 September 2026 The program reflects Otsuka’s commitment to facilitate early access to investigational medicines outside of a clinical trial, where permitted by local regulations, for people living with rare and life-threatening conditions who have limited or no available treatment options. Otsuka Pharmaceutical Development & Commercialization announced the initiation of a global early access program […]
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Research Spotlight: Connecting the immune system to ALS to develop new therapies
11 August 2026 Researchers have long suspected the immune system to be a key player in the connective breakdown between the brain and the muscles in people with ALS. At the Les Turner ALS Center at Northwestern Medicine, neuroimmunologist and assistant professor David Gate is putting this theory to the test. His investigation will not […]
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2025 Campaign – Roberta Flack – Killing me softly- World ALS Day
Together we make a difference: Discover our new campaign Killing Me Softly, a powerful call against ALS From 16 to…
Stand up for ALS
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ALS Actions
From now on, taking action is very easy and transparent. Would you like to help raise awareness of ALS and raise money for ALS? Then create an action page directly via ALSacties.be. This way, you can easily start an action to help in the fight against ALS. The ALS League’s current…
Activities
Info sessions
Along several channels, we hear the need for information. So this is where we started!
We are starting a new project, namely organizing free monthly information sessions.
Activities by us
At the ALS League, we are actively committed to organizing events and initiatives that not only bring people together, but also contribute to awareness and support for pALS and their loved ones. From informative meetings and sporting challenges to fundraising events, all of these activities are set up by us with one goal: to strengthen the fight against ALS. Discover here which activities we organize and how you can participate.
Activities for us
Many people are committed to supporting the ALS League by setting up events or actions themselves. Whether it is a benefit concert, a sponsored walk or a creative collection campaign, every effort helps us to support research and provide pALS with the necessary help. On this page you will find an overview of initiatives that are organized for the benefit of the ALS League.
Together we make the difference!