PRECISION-ALS
PRECISION-ALS: A European, observational study of comprehensive data collection from individual ALS patients
PRECISION-ALS is a registry in which UZ Leuven, together with other European ALS centers, aims to obtain a comprehensive picture of each individual patient's clinical profile, disease course and effectiveness of treatment. Because the clinical picture of each ALS patient is unique and unpredictable, this multicenter collaboration will allow us to map the clinical picture of a large number of patients and discover more subgroups and targeted therapies in the future. The study will last 36 months, with patients surveyed every 6-12 weeks. Because this is an observational study, no medication will be administered and there are no specific inclusion or exclusion criteria besides a diagnosis of ALS.
Objectives:
PRECISION-ALS is a multicenter study in which eight European ALS centers aim to gain a comprehensive picture of each individual patient's clinical profile, disease course and effectiveness of treatment. This is an observational study using data collection where no medication is administered.
